Tag Archives: Childrens Rights

“Your son is on CBD oil. He is terminated from the clinical trial. Don’t bother ever showing up again,”

13-Year-Old Denied Life-Saving Treatment Because He Used CBD Oil

13-Year-Old Denied Life-Saving Treatment Because He Used CBD Oil

March 5, 2018 By Burgess Powell

Kaden Hartman of Virginia Beach is 13-years-old and lives with Niemann-Pick disease, a condition known colloquially as Child’s Alzheimer’s. There are approximately 500 to 100 cases of diagnosed NPD today, making it extremely rare. Children with Niemann-Pick disease experience rapid physical and mental deterioration. Eventually, they’re faced with seizures and problems with mobility, eating, and communication. According to the National Niemann-Pick Disease Foundation, most children suffering from Child’s Alzheimer’s don’t live to age 20. Kathy Hartman, the mother of this 13-year-old denied life-saving treatment because he used CBD oil, reached out to High Times to explain what happened.

Kaden’s FDA-Approved Treatment

“When there’s nothing else out there to save his life, the FDA will approve an experimental medicine, and he’s been on it for almost three years,” Mrs. Hartman explains.

The drug the FDA approved for Kaden is called Cyclodextrin and has been effectively treating Kaden’s Niemann-Pick disease.

Doctors predicted that Kaden wouldn’t live to age 13, but he’ll be 14 in April.

“It’s definitely working,” says Mrs. Hartman.

In addition to the experimental Cyclodextrin, Kaden has been taking CBD oil since he started experiencing seizures, a common consequence of Niemann-Pick disease.

“It slows down seizures by, I think, 60 percent,” Mrs. Hartman says of CBD after doing research on the non-psychoactive compound of cannabis on her own.

Watching her son experience 10 to 20 seizures daily, Mrs. Hartman decided to give CBD a shot, under the supervision of Kaden’s primary neurologist.

“It seems to be working great,” Mrs. Hartman told Kaden’s neurologist who closely monitored his CBD use.

With CBD, Kaden avoided the negative side-effects associated with anti-seizure medication.

According to Kaden’s mother, the only potential results of CBD use are slight drowsiness and a better appetite.

Going off CBD, however, has had serious consequences.

After Mrs. Hartman received a letter from the Virginia Commonwealth University Medical Center (VCU), the hospital treating Kaden, stating that Kaden will be taken off the study if he uses CBD, she stopped giving him the herbal supplements.

Off CBD, Kaden experiences many seizures. He has since fractured his skull, concussed himself, and developed two blood clots in his brain.

Not only was this 13-year-old denied life-saving treatment because he used CBD oil, but CBD oil itself was a lifesaving treatment for seizures.

Neurologists who work with Niemann-Pick disease patients recommend CBD Oil

In addition to Kaden’s personal experience with CBD’s benefits, two of his neurologists recommended it.

His primary neurologist of 8 years suggested that Kaden take CBD to cope with his seizures.

Dr. Ralph Northam, Kaden’s former pediatrician who is now the governor of Virginia, wrote Kaden a prescription for cannabidiol.

Though Mrs. Hartman didn’t fill out this prescription at the time, it allowed Kaden access to CBD much more potent than the health store variety he later took.

Dr. Rebecca Caffrey, a friend of the Hartman family, explains, “CBD is the drug of choice for treating seizures in NPC kids.”

She cites another case of two young girls who suffer from Niemann-Pick disease and began taking CBD oil to minimize their seizures.

Not only did CBD help these girls—the daughters of Kathy Hartman’s friend Chris Hempel—but they are allowed to continue their other treatment, which is of the same nature as Kaden’s.

Four days after sending Mrs. Hartman that threatening letter, VCU gave her a call.

“Your son is on CBD oil. He is terminated from the clinical trial. Don’t bother ever showing up again,” Mrs. Hartman says, summing up her conversation.

PLEASE CONTINUE READING…

Advertisements

In Peru, mothers rouse support for legalizing medical marijuana

Ana Alvarez, a working mother of two in Lima, never imagined being on the frontlines of a fight for marijuana in conservative Peru.

But a police raid on a makeshift cannabis lab that she and other women started to soothe the symptoms of their sick children has roused support for medical marijuana, prompting President Pedro Pablo Kuczynski to propose legalizing it in the latest pivot away from decades-old restrictions on drug use in Latin America.

Alvarez said cannabis oil is the only drug that helped contain her epileptic and schizophrenic son’s seizures and psychotic episodes. She and other women in similar situations formed the group Searching for Hope to seek legal backing as they honed techniques for producing the drug.

“We wrote to Congress, to the health ministry,” Alvarez said from her apartment as her son played in his room. “We got two negative responses.”

But the police bust put the women’s plight on national television, triggering an outpouring of sympathy as they marched with their children in tow to demand police “give us our medicine back.”

“When we saw their reality, we realized there’s a void in our laws for this kind of use” of marijuana, said cabinet advisor Leonardo Caparros. “We couldn’t turn a blind eye.”

It is unclear if the right-wing opposition-controlled Congress will pass Kuczynski’s proposed legislation, which would allow marijuana to be imported and sold in Peru for medical reasons and could permit domestic production after two years.

Kuczynski, a 78-year-old socially liberal economist, once provoked an uproar for saying that smoking a joint “isn’t the end of the world.”

But an Ipsos poll conducted following the raid showed 65 percent of Peruvians favor legalizing medical marijuana, and another 13 percent back legalizing the drug for recreational use.

If the bill is passed, Peru would follow neighboring Chile and Colombia in legalizing the medical use of marijuana. Mexico’s Senate has approved a bill to permit the use of medical marijuana, while Uruguay has fully legalized cannabis from seed to smoke.

In the meantime, Searching for Hope has turned to the black market. Member Roxana Tasayco said cannabis oil had given her terminal cancer-stricken mother her appetite back and calmed her vomiting and nausea.

Also In Health News

“It’s not going to cure her but it’ll give her a better quality of life in her last days,” said Tasayco. “If I have to break a few laws to do that for her I will.”

(Reporting By Mitra Taj; Editing by Andrea Ricci)

CONTINUE READING…